For those living with PWS, hyperphagia is a life-threatening feeling of intense, persistent hunger that can diminish quality of life.

People with Prader-Willi syndrome can live into their 60s or beyond when they receive an early diagnosis and maintain effective weight management throughout their lives. Respiratory failure represents ...

Heidi Cope is a health and science writer based in Fort Worth, Texas. She often writes long-form, informational content about health, wellness, and disability, and enjoys interviewing healthcare ...

New research from the University of East Anglia (UK) reveals the hidden struggles experienced by the brothers and sisters of people with Prader–Willi syndrome. Prader–Willi syndrome is a rare genetic ...

Juliana Steffan's mother, April Steffan, created a YouTube video about Prader-Willi syndrome, a rare genetic disorder that causes a chronic feeling of hunger, among other physical, mental and ...

Family genetics evaluations. Several family visits with the geneticist and subsequent laboratory evaluations revealed that Bobby had PWS. It was also established that his siblings did not have the ...

Prader-Willi syndrome is a genetic disorder that affects growth, behavior, and learning. There is no cure for the syndrome, but continual monitoring and treatment may improve a person’s quality of ...

The United States Food and Drug Administration (US FDA) has approved VYKAT™ XR, a significant milestone as the first approved treatment for hyperphagia in Prader-Willi syndrome (PWS). This ...

Infants with Prader-Willi syndrome often show weak muscle tone and feeding challenges from birth, requiring specialized support like adapted bottles or feeding tubes during the early months to ensure ...

Healthcare providers diagnose Prader-Willi syndrome (PWS) using a combination of clinical signs and genetic testing. If someone has several symptoms of PWS, they can be sent for genetic testing to ...

Prader-Willi syndrome presents differently across life stages, beginning with low muscle tone and feeding difficulties in infancy, and then shifting to insatiable hunger and rapid weight gain starting ...