Columnist Connie Chandler shares how a simple childhood craft allowed her to be genuinely seen by others and form ...

Using disease-modifying therapies may help children with SMA types 1 and 2 maintain better nutrition and prevent stunted ...

Spinraza was linked to changes in CSF biomarkers in SMA, some of which were associated with motor gains, but more research is ...

Evidence-based guidelines have been developed for newborn screening, diagnosis, and early management of SMA in Australia and ...

Columnist Sherry Toh pushes back against narratives that blame parents for a child's disability, and instead thanks her ...

SMA newborn screening may help children start treatment earlier, supporting better independence and daily function at school ...

Caregiving can involve multitasking, but columnist Connie Chandler asks what do you do when your caregiver is better at one ...

The FDA has accepted Scholar Rock's application for regulatory approval of apitegromab for SMA and is expected to have its ...

Columnist Ari Anderson shares how his home-care nurses help to provide him with two things that are vital while living with ...

As columnist Helen Baldwin prepares to celebrate the 29th birthday of her son, who died from SMA in 1997, she welcomes a new ...

Children with SMA diagnosed via newborn screening programs typically start treatment earlier and reach more motor milestones, ...

In episode 156, host Kevin Schaefer talks with Maylan Chavez and Sory Rivera, two friends with SMA who host the… ...