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Dublin protest demands HSE funding for Skyclarys to treat Friedreich's ataxia

Demonstrators gathered in Dublin city centre on Sunday, urging the HSE to approve reimbursement for Skyclarys, a drug that ...
Western People

Protest in Dublin over Skyclarys reimbursement

It is a rare, inherited neurodegenerative disorder that affects the nervous system and can lead to severe movement and ...

‘Don’t want my parents to bury another child’ – Friedreich Ataxia campaigners in desperate drug plea at Dublin protest

PEOPLE suffering from Friedreich’s Ataxia gathered in Dublin to beg authorities to greenlight a new miracle drug as one woman ...
Irish Examiner

Hundreds protest as deadline for final decision over potentially lifesaving Friedreich's Ataxia treatment looms

A protest in Dublin city centre saw hundreds of people call for the HSE to approve the drug Skyclarys for reimbursement ...

‘We can’t wait anymore’ – Friedreich’s ataxia campaigners to hold protest in Dublin after life-transforming drug delay

CAMPAIGNERS who say a drug is their “only hope” in fighting against a rare neurological disease are set to hold a protest. The group is calling for the HSE to reimburse Skyclarys, a ...
Irish Mirror on MSN

Campaigners hold protest in Dublin calling for life-changing Skyclarys access

Skyclarys has shown promising results in slowing the progression of Friedreich’s Ataxia, a rare progressive neuromuscular ...
Independent.ie

‘Our lives are worth more than money’ – Friedreich’s ataxia campaigners to hold protest in Dublin

Freidreich’s ataxia campaigners are to stage a protest in Dublin this week, calling for HSE reimbursement for a drug treating ...