What is Dystrophic Epidermolysis Bullosa?
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YouTubeCheckRare
What is Dystrophic Epidermolysis Bullosa?
Juan Roman, Vice President at Krystal Biotech, gives an overview of dystrophic epidermolysis bullosa (DEB). As Mr. Roman explains, DEB is one of the major forms of epidermolysis bullosa, a group of genetic skin diseases that cause the skin to blister and erode very easily. The signs and symptoms of DEB vary widely among affected people. In mild ...
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🦋Tucker was born with a very rare severe genetic skin disorder. Recessive Dystrophic Epidermolysis Bullosa. Also known as butterfly skin. Very fragile. Friction can cause blisters and open wounds that affect all the layers of skin. This condition can cause many different medical issues. This last fall he has been diagnosed with a heart condition. Dialated Cardiomyopathy. Tucker🦋is now on hospice care. We are asking for prayers for healing and strengthening his heart. In Jesus name. Amen.🙏❤️💯
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