Instead of toys, a 2-year-old with a rare disease hopes to be gifted a kidney for his birthday. https://www.newschannel5.com/news/2-year-old-with-rare-disorder-hopes-to-be-gifted-a-kidney-for-his-birthday | NewsChannel 5 Nashville
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As part of #ChildhoodCancerAwarenessMonth, CHLA’s Cancer and Blood Disease Institute patients were surprised with a special gift from our friends at Mattel: 100 Brave Barbie and Ken dolls! 💕 Delivered by our incredible Child Life team, these dolls bring moments of joy, spark imaginative play, and help kids feel strong and supported during treatment where they may experience hair loss. Our Child Life Specialists use dolls to help children understand their treatments and feel more at ease in the
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My son has childhood dementia caused by a rare neurodegenerative disease called Sanfilippo syndrome. The toys we buy for him now are marketed for much younger children. He isn’t as willing to sit and play with it lately and we don’t know if it’s because of lack of interest or his increasing loss of skills. The car ramp itself is a great sturdy toy that has survived being thrown many times. I do recommend it even if it’s not as exciting for him now as I would have hoped. 😞💜 #sanfilippo #special
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