What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
1:01
YouTubeEB Research Partnership
What Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)
Thomas DiPalma is one of the many people living with Epidermolysis Bullosa (EB), often called “the butterfly disease” because of how fragile the skin can be. In this conversation, EBRP CEO Michael Hund helps break down what EB is and why it gives us both urgency and hope. We’re grateful to @NYSE and Ashley Mastronardi for taking the time ...
1.2K views3 months ago
Epidermolysis Bullosa Symptoms
Understanding Epidermolysis Bullosa
2:43
Understanding Epidermolysis Bullosa
YouTubeThe Doctors
159.1K viewsMay 4, 2017
Epidermolysis Bullosa | Causes, Symptoms, Treatment.
14:58
Epidermolysis Bullosa | Causes, Symptoms, Treatment.
YouTubeBizMove
1.5K viewsApr 19, 2021
Butterfly skin: Caring for patients with epidermolysis bullosa | Ep.1: Health Compass Podcast
49:21
Butterfly skin: Caring for patients with epidermolysis bullosa | Ep.1: Health Compass Podcast
YouTubeStanford Medicine
4K views4 months ago
Top videos
Living with Epidermolysis Bullosa (EB) & Rare Disease Day
2:41
Living with Epidermolysis Bullosa (EB) & Rare Disease Day
TikTokdantownley
3.9K views4 months ago
Darcie was born with a rare genetic skin disorder called junctional epidermolysis bullosa.
0:18
Darcie was born with a rare genetic skin disorder called junctional epidermolysis bullosa.
YouTubeHope_For_Cancer_Kids
1.7K views3 weeks ago
One Hour With EB: A Parent's Story of Medical Emergency
0:49
One Hour With EB: A Parent's Story of Medical Emergency
TikTokmackenzies_eb_journey
18.2M views3 months ago
Epidermolysis Bullosa Treatment
Epidermolysis Bullosa Care Videos: EB bathing and dressing routine videos
50:20
Epidermolysis Bullosa Care Videos: EB bathing and dressing routine videos
YouTubeSekineRisa
926.7K views3 months ago
1. Approach and Management of Epidermolysis Bullosa - Part 1: Modalities for Care
41:17
1. Approach and Management of Epidermolysis Bullosa - Part 1: Modalities for Care
YouTubeSkinSire
1.2K viewsJun 8, 2024
Supporting healing in epidermolysis bullosa: Innovations and new directions for care
17:50
Supporting healing in epidermolysis bullosa: Innovations and new directions for care
YouTubeTouch Medical Media
778 viewsDec 3, 2024
Living with Epidermolysis Bullosa (EB) & Rare Disease Day
2:41
Living with Epidermolysis Bullosa (EB) & Rare Disease Day
3.9K views4 months ago
TikTokdantownley
Darcie was born with a rare genetic skin disorder called junctional epidermolysis bullosa.
0:18
Darcie was born with a rare genetic skin disorder called junctional epidermolysis bullosa.
1.7K views3 weeks ago
YouTubeHope_For_Cancer_Kids
One Hour With EB: A Parent's Story of Medical Emergency
0:49
One Hour With EB: A Parent's Story of Medical Emergency
18.2M views3 months ago
TikTokmackenzies_eb_journey
The Painful Reality of Living With Fragile Skin
0:48
The Painful Reality of Living With Fragile Skin
29.5K views4 months ago
YouTubeDoctor Sood
Raising awareness for Epidermolysis Bullosa
0:28
Raising awareness for Epidermolysis Bullosa
2 weeks ago
YouTubeHope_For_Cancer_Kids
One Film Is Inspiring Scientists to Join the Fight for a Cure
1:06
One Film Is Inspiring Scientists to Join the Fight for a Cure
54 views4 months ago
YouTubeEB Research Partnership
Epidermolysis bulosa diseases ?
1:14
Epidermolysis bulosa diseases ?
120 views10 months ago
YouTubeBioscope (Dr GS)
1:16
A rare disease that makes even gentle touch painful
1.3K views4 months ago
YouTubeStanford Medicine
1:06
The Children Living With a Rare, Life-Threatening Skin Disease
2.1K views4 months ago
YouTubeAmanpour and Company
0:31
One Week Until a Rare Disease Story Reaches the World #eddievedder #epidermolysisbullosa
902 views5 months ago
YouTubeEB Research Partnership
0:55
The Race to Cure the Butterfly Disease | Matter of Time #eddievedder #epidermolysisbullosa #healeb
1.5K views5 months ago
YouTubeEB Research Partnership
1:06
Understanding Epidermolysis Bullosa: Darcie's Daily Care
2.8M views6 months ago
TikTokdarcies_story
1:29
Gene Therapy Offers Hope for Australian Children with Epidermolysis Bullosa
150.6K views2 months ago
TikTok9newsmelbourne
0:37
This Girl's Skin Tears From a Simple Touch?! 😳 #shorts #facts #science
1.3K views1 month ago
YouTubeJmsvShorts
0:22
There are only a handful of EB clinics in the country, with most being at children’s hospitals. Cincinnati Children’s is the closest from home for me and currently patients with EB are seen there regardless of age. Especially having RDEB, it takes a whole team of specialized providers familiar with many of the other symptoms that can be caused and how to best manage them. People with EB are living longer nowadays and there is much hope for more specialized care for adults. 😏 PS I’m still very g
9.6K views4 months ago
TikToklucyhelen2
2:29
What is the Epstein-Barr virus? #ebv
12.3K viewsFeb 23, 2024
YouTubeThe Straits Times
0:26
Epidermolysis Bullosa Mnemonic You’ll Never Forget 🦋
304 views1 month ago
YouTubeDermatology mnemonics + AMC🤪
2:23
2️⃣ Butterfly Disease Reality | A Child with EB Preparing for School Epidermolysis Bullosa
66 views4 months ago
YouTubeDebra Türkiye - Kelebek Çocuklar Derneği EB
2:09
How Venture Philanthropy Is Accelerating a Cure for EB | Michael Hund (EBRP)
69 views3 months ago
YouTubeEB Research Partnership
See more
Static thumbnail place holder