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beyondbatten.org
Understanding Batten - Beyond Batten Disease Foundation
Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.
Jan 7, 2020
Batten disease Symptoms
A new children's book is helping families talk about rare, fatal Batten disease
ABC News
Kathleen Calderwood
Dec 3, 2022
Batten Disease
nationwidechildrens.org
May 8, 2018
Batten Disease
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“It’s Dr. Emily’s relentless effort to stop Batten disease in its tracks that’s given our daughter a quality of life we didn’t think was possible when she was first diagnosed. I just want to hug her every time I see her.” -Tayla’s Mom #WomenInScienceDay | Nationwide Children's Hospital
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The BDSRA Annual Family Conference is a haven for our Batten disease community. It’s where lifelong bonds and friendships are formed and where crucial information is learned. Your gifts to the BDSRA Foundation make the Annual Family Conference possible, so Batten families like Mitch’s won’t be alone on their Batten journey. Join our Batten families in the fight for treatments and a cure for Batten disease: https://ow.ly/PfGS50XIE9H Mail checks to: BDSRA Foundation PO Box 30049 Gahanna, OH 43230
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